Johns Hopkins Medical Institutions Information Network
Johns Hopkins Medicine
Patient Advocacy Numbers
Please help expand this list. Please send correction/additions for this list to:
www@infonet.welch.jhu.edu
- Aging
- 800-424-9046 National Council on Aging
- 800-424-2277 American Association of Retired Persons
- 800-222-3937 National Eye Care Project
- Aids
- 800-458-5231 National AIDS Information Clearinghouse
- 800-342-AIDS National AIDS Hotline
- 800-669-0696 AIDS Education at Work
- 800-874-2572 AIDS Clinical Trials Information Service
- 800-673-8538 National Association of People with AIDS
###-###-#### Computerized AIDS Ministries
- Alcohol
- 800-622-2255 National Council on Alcoholism
- 800-344-2666 Al-Anon, Alateen Family Group Hotline
- 800-527-5344 American Council on Alcoholism
- 800-729-6686 National Clearinghouse for Alcohol and Drug Information
- Allergy
- 800-822-2762 American Academy of Allergy and Immunology
- 800-727-8462 Asthma and Allergy Foundation of America
- Alzheimer's
- 800-272-3900 Alzheimer's Association
- 800-477-2243 French Foundation for Alzheimer's Research
- Amyotrophic Lateral Sclerosis
- 800-782-4747 Amyotrophic Lateral Sclerosis Association
- Anorexia/Bulimia
- ???-???-???? Bulimia Anorexia Self-Help
- ???-???-???? Eating Disorders Helpline Unit
- Arthritis
- 800-283-7800 Arthritis Foundation
- 800-327-3027 Arthritis Consulting Services
- Back Pain
- 800-247-2225 Back Pain Hotline
- Birth Defects
- 800-221-6827 National Easter Seal Society
- Blind/Vision Impaired
- 800-683-5555 Foundation Fighting Blindness
- 800-424-8666 National Alliance of Blind Students
- 800-232-5463 American Foundation for the Blind
- 800-562-6265 National Association of Parents of Visually Impaired
- 800-334-5497 National Center for Vision and Aging
- 800-548-4337 Guide Dog Foundation for the Blind
- 800-424-8567 National Library Services for the Blind and Physically Handicapped
- Brain Tumor
- 800-886-2282 American Brain Tumor Association
- Cancer
- 800-4-CANCER National Cancer Institute
- 800-525-3777 AMC Information and Counseling Line
- 800-843-8114 American Institute for Cancer Research
- 800-366-2223 Candelighters Childhood Cancer Foundation
- 800-452-CURE International Myeloma Foundation
- 510-204-4286 Alta Bates-Herrick Breast Cancer Risk Counseling
- 800-ACS-2345 American Cancer Society
- 301-496-7403 NCI's CancerFax
- 800-55-CHEMO CHEMOcare
- 212-719-0154 National Alliance of Breast Cancer Organizations (NABCO)
- 202-296-7477 National Breast Cancer Coalition
- 800-4-CANCER Cancer Information Service
- 212-719-0364 SHARE
- 301-984-9496 The Association of Community Cancer Centers
- 800-IM-AWARE The Susan G. Komen Breast Cancer Foundation
- 800-221-2141 Y-ME Breast Cancer Organization (24 hrs: 312-986-8228)
- 708-323-1002 US TOO International (Prostate Cancer/BPH)
- Cerebral Palsy
- 800-872-1827 United Cerebral Palsy Association, Inc.
- Children
- 800-433-9016 American Academy of Pediatrics
- 800-422-4453 Child Help USA
- 800-787-KIDS Children's Rights Council
- 800-872-5437 Missing Children Help Center
- 800-843-5678 National Center for Missing and Exploited Children
- 800-422-4453 National Child Abuse Hotline
- 800-892-5437 Kidsrights
- 800-222-2000 National Council on Child Abuse and Family Violence
- Cleft Palate
- 800-242-5338 National Cleft Palate Association
- Cocaine
- 800-262-2463 National Cocaine Hotline
- 800-347-8998 Cocaine Anonymous
- Crohn's/Colitis
- 800-343-3637 Crohn's and Colitis Foundation of America
- Cystic Fibrosis
- 800-344-4823 Cystic Fibrosis Foundation
- Depression
- 800-248-4344 National Foundation for Depressive Illness
410-955-4647 Depression
and Related Affective Disorders Association
- Diabetes
- 800-223-1138 Juvenile Diabetes Foundation
- 800-232-3472 American Diabetes Foundation
- Disabilities
- 407-880-9232 American Association of Disabled Persons
- 800-962-9629 National Spinal Cord Injury Association
- 800-248-2253 National Organization on Disability
- 800-346-2742 National Rehabilitation Information Center
- 800-922-9234 National Information Clearinghouse for Infants with
- Disabilities and Life-Threatening Conditions
- 800-835-1043 Institute of Logopedics
- 800-344-5405 ABLEDATA
- 800-333-6293 National Center for Youth with Disabilities
- 800-426-2133 National Support Center for Persons with Disabilities
- Divorce
- 800-733-DADS National Congress for Men and Children
800-457-6962 Mothers without Custody
800-637-7974 Parents without Partners
- Down Syndrome
- 800-221-4602 National Down Syndrome Society
- 800-232-6372 National Down Syndrome Congress
- Drug Abuse
- 800-729-6686 National Clearinghouse for Alcohol and Drug Information
- 800-662-4357 CSAT's National Drug and Alcohol Treatment Routing Service
- 800-667-7433 National Parents' Resource Institute for Drug Education
- 800-258-2766 Just Say No International
- Endometriosis
- 800-992-3636 Endometriosis Association
- Epilepsy
- 800-332-1000 Epilepsy Foundation of America
- 800-642-0500 Epilepsy Information Service
- Head Injury
- 800-444-6443 National Head Injury Foundation
- Headache
- 800-843-2256 National Headache Foundation
- 800-245-0088 New England Headache Treatment Program
- Hearing/Communication Handicaps
- 800-424-8576 Better Hearing Institute
- 800-638-8255 American Speech Language Hearing Association
- 800-535-3323 Deafness Research Foundation
- 800-521-5247 Hearing Aid Helpline
- Hemolytic Uremic Syndrome
- 516-673-3017 Lois Joy Galler Foundation
- Hemophilia
- 800-424-2634 National Hemophilia Foundation
- Hepatitis
- 800-223-0179 American Liver Foundation Hepatitis Foundation
- 800-891-0707 Hepatitis Foundation International
- Huntington's Disease
- 800-345-4372 Huntington's Disease Society
- Impotence
- 800-835-7667 Recovery of Male Potency
- 800-843-4315 Impotence Information Center
- Incontinence
- 800-237-4666 Simon Foundation
- Lupus
- 800-558-0121 Lupus Foundation
- 800-331-1802 American Lupus Society
- Lymphedema Network
- 800-541-3259 National Lymphedema Network
- Marfan Synfrome
- 800-8MARFAN National Marfan Foundation
- Mental Retardation
- 817-261-6003 The Arc of the United States
- Multiple Sclerosis
- 800-624-8236 National Multiple Sclerosis Society
- Myasthenia Gravis Foundation
- 800-541-5454 Myasthenia Gravis Foundation
- Narcolepsy
- 800-222-6085 American Narcolepsy Association
- 800-829-1933 Narcolepsy & Sleep Disorders
- Paralysis
- 800-225-0292 American Paralysis Association
- Parkinson's Disease
- 800-344-7872 Parkinson's Educational Program
- 800-233-2732 American Parkinson Disease Association
- Premenstrual Syndrome
- 800-222-4767 PMS Access
- Prenatal Care
- 800-673-8444 Healthy Mothers, Healthy Babies Coalition
- 800-433-5523 Be Healthy, Inc.
- Retinitis Pigmentosa
- 800-638-2300 National Retinitis Pigmentosa Foundation
- Schizophrenia
- 800-847-3802 American Schizophrenia Association
- Scleroderma
- 800-722-4673 United Scleroderma Foundation
- 800-441-CURE Scleroderma Research Foundation
- Sexually Transmitted Diseases
- 800-227-8922 National STD Hotline
- Sickle Cell
- 800-421-8453 National Association for Sickle Cell Disease, Inc.
- Spina Bifida
- 800-621-3141 Spina Bifida Association
- Stroke
- 800-553-6321 Courage Stroke Network
- 800-787-6537 National Stroke Association
- Stuttering
- 800-221-2483 National Center for Stuttering
- Tourette Syndrome
- 800-237-0717 Tourette Syndrome Association
- Wilson's Disease
- 800-399-0266 Wilson's Diesease Association
Credits:
Freedom Pharmacy
Breast Cancer Information Clearinghouse
(a project of the New York State Education and Research Network (NYSERNet)
www@infonet.welch.jhu.edu
JHMI-InfoNet Jul 6, 1995
http://infonet.welch.jhu.edu/advocacy.html